Primary goals

JHDN’s primary goals are to provide and share information on the latest researches and resources on HD, through the internet activities.


・To run and update the JHDN website and the JHDN listserve
・To liaison with other HD societies, i.e WFN/IHA for the latest information on the development of the researches around the world
・ To translate and distribute the documents and publications from other countries for Japanese readers
・To distribute the newsletters (once in a year), the short news letters (fax or mail) to HD families and those who are interested
・ To organize HD family meetings for informal talks and discussions

Greetings from representative

New representative has been appointed. His messsage is coming soon.